For many biohackers, like myself, the journey into this science starts with a personal struggle—a battle with an incurable illness. In my case, it’s end-stage liver disease, a condition that traditional medicine has no solution for. While biohacking may seem extreme to some, for those of us with terminal illnesses, it’s a path born out of necessity, not just curiosity. We have higher risk profiles because we don’t have the luxury of time. Our health is at stake, and for many, seeking traditional solutions, like organ transplants, isn’t the answer.
The organ transplant system is, at its core, flawed. In my experience, it’s a profit-driven machine, not one built on saving lives equitably. When you show up with a non-alcoholic version of end-stage liver disease, like I did, big healthcare is suddenly scared. They see a case that could harm their success rates, damage their reputations, and—worst of all—lessen the flood of big-money donations they rely on. The system is built to benefit them, not patients like me. The result? I spent everything I had seeking a transplant, but the answer I got was the same: “It’s not for you.”
At this point, I had no choice but to take my learning into my own hands. I delved deeper into the world of biohacking. Now, I perform experiments on myself using stem cells and exosomes that I’ve learned to make on my own. Yes, you can learn how to do this—science is more accessible than ever. Platforms like The-Odin.com teach people how to biohack and create their own solutions, guided by pioneers like my mentor, Josie Zayner, who champions open discovery and teaching. Josie is breaking the barriers of traditional science, giving people the tools to take control of their health.
The U.S. healthcare system is broken, and so is the government. Biohackers are proof that people are capable of curing themselves when the system fails them. We don’t need to wait for a cure that may never come when we have the tools and the science available right now. Full bodily autonomy should be our goal. With stem cells, exosomes, and CRISPR technology, the future of healing is already here—we just need to embrace it.
If you want to learn more about my journey, follow me on Facebook or Instagram. Subscribe to my Substack to stay updated on my discoveries, and once my health improves, I’ll be offering classes on how to take control of your own biology. The science is here—let’s use it for good.
We are all rooting on you Robyn. It's not fair what you've been going through.